LIVING WITH VISION LOSS
The Association for Macular Diseases has partnered with Ophthalmic Edge to bring practical tips and encouraging advice to all patients living with vision loss and their physicians.
Since 1979, the Association for Macular Diseases has offered support to individuals, their families, friends, and the professional community.
In 2017, we expanded our reach with the launch of this website and a joined effort with Ophthalmic Edge to empower patients living with all causes of vision loss, and to educate the professionals that serve them.
OEPatients.org, provides practical tips and encouraging advice for living well with vision loss. An insider’s guide, filled with a wide-range of constructive ideas and strategies in categories that include: Accessibility & Technology, Making Adjustments, Health & Well-Being and the OE Patients Podcast.
The Association is based in Manhattan Eye, Ear & Throat Hospital at 210 East 64 Street in NYC. In collaboration with the hospital, we present a series of events on Accessibility Resources for People with Visual Impairments. Schedules for upcoming events and recaps of past events are at OEPatients.org/events.
BOARD OF DIRECTORS
The Association for Macular Diseases, Inc. is guided by a dedicated Board of Directors:
Namrata Saroj, ODPresident
Mary Fern BreheneyVICE PRESIDENT
Joan R. DalyTREASURER
Namrata Saroj, OD
Namrata is an independent consultant focusing on developing new drugs and technologies for advancing ophthalmic care. Prior to this, she led the Ophthalmology Medical Affairs as an Executive Director at Regeneron Pharmaceuticals, Inc. Her additional experience included positions at Genentech and at Manhattan Eye, Ear & Throat Hospital. Namrata earned her Doctor of Optometry from the University of California at Berkeley. She holds a Bachelor of Science in Optometry from the University of California and a Bachelor of Arts in Biochemistry from Whittier College.
Mary Fern Breheney
Mary Fern Breheney, a Board Director for the Association for Macular Diseases for nearly 20 years, resides in the Mid-Hudson Valley where she practices Elder Law, Estate Planning and Administration. Mary is married to Bud Breheney and they have two adult children.
Dorrie Rush is a Visual Accessibility Expert and progressive proponent for Universal Access and Inclusive Design. She is the former Director of the Grunwald Technology Center and Information Resource Service at Lighthouse International 2001 to 2016. Dorrie is known to have an eccentric view, which is particularly useful in compensating for her central vision loss from Stargardt Disease.
Joan R. Daly
Joan R. Daly is a Registered Nurse. She served for 35years as Clinical and Administrative Director of Ophthalmology Research at Manhattan Eye Ear and Throat Hospital. Joan also coordinated outreach and educational programs for the visually impaired.
Patricia Dahl is the Executive Director/CEO of The Eye-Bank for Sight Restoration in New York and has 30 years of experience in eye banking. She is a past-Chair of the Eye Bank Association of America and has served on a variety of key committees, including Medical Advisory Board, Accreditation Board and Certification Board.
Nanette Stevenson is the daughter of Nikolai Stevenson, the former President of the Association for Macular Diseases. Having watched her father adjust to life with macular disease, she hopes to carry on in his efforts to reach out and support those who are diagnosed with this affliction.
Bernie Landou was the Association’s President for nine years, and the Editor-In-Chief of its Eyes Only Newsletter for thirteen years. He first joined the Association’s volunteers in 1990 after a long professional career as a Public Relations Executive. He has extensively shared his experience and his perspective on living with age-related macular degeneration.
Help Us Help More
Your support helps us continue to empower and inspire patients living
with vision loss to keep doing the things they need to do and love to do.